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Old Fri Jan 24, 2014, 08:43 PM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
predisone

I know that this is not a direct answer, but it was my experience on predisone. For about 6 months prior to my MDS diagnosis, I was being treated for ITP with prednisone, imuran, and rituxan. Although it was a difficult experience I did find that getting daily exercise, focusing the highest dose of prednisone into the morning, and splitting the dose up so that it was not all one big hit really helped me the most. Once I was able to integrate the drugs into my body's daily pattern, I was able to sleep, wasn't quite as moody, and didn't feel like my heart was going to pound its way right out of my chest.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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