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I have Pure Red Cell Aplasia (PRCA). It is "not very common." When I first got sick, they were suspecting MDS. The first two bone marrow biopsies were considered bad samples. The third was sent to the local medical school, where PRCA was found.
Maybe they should look for that or something else.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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