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Revlimid not holding counts
Hello Garbs
I have just read your post and wondered how you were progressing now. did your counts stabalise? were your red cells the only line affected?
I cannot offer any andvice as Revlimid seems to be stopping working for my husband after being Tx free for 4 mths. We knew this might happen as his 5q- deffect did not disappear. His Gb is going down slowly and we are trying to guess if he will last through the holiday season without needing a Tx.
He is taking 5mg and it would seem logical to increase the dose back to 10mg but as we are in Australia and as it is only available under restricted trial conditions that is not possible.
I hope you are ok
Helen
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Husband, MDS 5q- 2003. Transfusions,desferal infusions, Revlimid 2007 partial remission. David passed away Nov 2010 with untreatable heart arrythmia probably from iron overload.
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