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Old Fri Jun 26, 2015, 08:37 PM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
I'm like you Data - WW (but without the worry). Don't know whether I would choose transplant now, even if it was the only option left. Apart from antibiotics for infections, I've been pretty much drug free all my life - rarely even take paracetamol. Have tried heavier drugs when I used to get migraines and they make me feel dreadful during and afterwards. Don't know how I would cope with any kind of chemo. Just thankful that I feel normal most of the time after the drop in blasts in 2012.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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