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Old Sun Jun 28, 2015, 11:20 AM
bailie bailie is offline
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Join Date: Dec 2013
Location: McMinnville,OR
Posts: 825
Data, you asked, "Does that mean you life prior to the SCT was just "acceptable"?

Yes, my life before the SCT was "acceptable" as opposed to not being "acceptable". I have had a very full life and would like to continue it as long as possible. I have zero regrets for having had the SCT. I have not felt any significant pain following the SCT and am golfing weekly. Golfing is my litmus test for how I am feeling. Life with my family and friends has been high quality since the transplant. My life right now is very similar to my life pre-SCT with the hope of continuous improvement.

As I said previously, everyone's situation is different. It is important for each person to understand their particular situation. I would rather be alive than dead. I wouldn't be alive at this time without the SCT. My life since the SCT has been very rewarding in many ways. I never had symptoms of MDS prior to my transplant. I have only had one transfusion and that was a day following transplant when my platelets fell for a day into transfusion territory.

I appreciate your comments. Always worth the discussion.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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