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Old Sun Oct 2, 2011, 04:18 PM
cheri cheri is offline
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Join Date: Nov 2010
Location: Tuckahoe New Jersey
Posts: 243
still here..........

Well, this has been quite the pesky fever. I have been on IV Cipro, Flagyl for days, gotten 2 units PRBC, officially diagnosed with "colitis" and have numerous other drugs going on. But I made the right choice to be here and have everyone come to me....all of the Drs are on the same page at the same time.

Still not fever free, but declining daily. I has definitely taken me longer to snap back this time, but determined to get better before leaving....today is the first day I felt a little better....

Thinking of starting Danazole when I get out...supposed to help platelets and possibly white counts too. Unexpected hairiness a concern!
More later....cheri
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
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