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It is so true---MDS is different in every single person and treatment is so tough to figure out! There isn't one protocol to follow and that is what is frustrating!
This forum is so helpful....I am so encourage by people who rally back after what seems like an impossible situation...
This Oct 16 will be my 2 year anniversary of my AML diagnosis........and I am really grateful to still be here! From being told, several times, I had 3 months to live!
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
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