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Life expectancy
Hi Chery,
It is difficult to understand how someone can believe that he/she can tell how long a person will live - I think it is enough to give information that it is a serious disease. You are a true fighter but some persons can be very depressed if they are told that the prognosis is so bad.
I have had this dx 5.5 years now. My doctor knows that I read about the disease at the net and has never discussed life expectancy. 2006 when I got my dx the info about life expectancy in MDS was already 9 years old and I understood that much had happened since 1997.
2009 I participated in a one day education for MDS patients and Professor Eva Hellström-Lindberg (a specialist in MDS) told us that many patients lived much longer because of better treatment.
Hope you will soon be well enough to be able to leave the hospital!
Kind regards
Birgitta-A
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