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Hi KaitalS,
My husband started transfusions 4 months before he was able to get a diagnosis in 2009. It took a trip to The National Institutes of Health in Bethesda, Md. to finally find out he had MDS - they are the best. The experts in Richmond, Va. (and I mean that sincerely) just couldn't diagnosis. You may want to consider trying to get accepted there. They saved my husband's life - he has been in remission going on 5 years now after over 125 blood/platelet transfusions.
I wish you the best!
Sally
Last edited by Sally C : Tue Apr 12, 2016 at 04:31 PM.
Reason: Remission has been almost 5 years instead of 4 :)
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