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Old Wed Jun 11, 2008, 01:58 AM
Lisa V Lisa V is offline
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Join Date: Aug 2006
Location: Waimanalo, Hawaii
Posts: 401
Hi again, Bill!

We were living in Honolulu when Ken was diagnosed, but we've since moved to Waimanalo. We also met another AAer who lives in Mililani, but that's all I know locally. I'm not aware of any cluster effect. I asked our doctor (Dr. Miller at Kaiser) in the beginning how many AA patients he had and I think he said 3. I don't know if that's 3 current ones or 3 total, but either way it's not very many.

We have a farm, and the doc thinks most likely scenario is exposure to agricultural chemicals, although his onset came around the time we were building our house, so that's another possible source of chemical exposure.

If you want to talk story, send me a PM!
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-Lisa, husband Ken age 60 dx SAA 7/04, dx hypo MDS 1/06 w/finding of trisomy 8; 2 ATGs, partial remission, still using cyclosporine
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