Hi Marlene,
You know we don´t feel when the ferritin value is too high. The liver, heart and other organs are slowly damaged without symptoms
. My dr has controlled my liver tests once a month since dx and they have never increased (I don´t drink alcohol and have never taken any drugs since I havn´t been ill before I got MDS). I started with Desferal after about 40 units of RBC:s - they often mention 20 units as a limit for chelating therapy.
Yes, B12 and folate were OK when I had my dx - I now take both and B6 as well as multivitamins without iron. I have read that when you have hemolysis as I have you need lots of folate.
Kind regards
Birgitta-A