Hi Vernette,
I live in Redding, but travel to Stanford for follow-up exams every two to three months. I usually stay overnight with my parents in Los Gatos, so if you ever want to get together let me know. I have an appt. at the end of this week, but that may be too soon to plan something.
I was diagnosed with MDS-unclassified in June 2008 and in Sept. I was to have a Stem Cell Transplant. I am fortunate to have five unrelated matched donors. I left my job when they started pre-transplant testing and then my counts suddenly stabilized. We have been "watching and waiting" ever since. Every time I have my blood work done, I hold my breath and hope there isn't any change. At some point it will happen but I'm enjoying this time I have with my husband, three daughters and new granddaughter.
I would like to hear more about your story. Feel free to send me a message anytime.
Jill
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Jill, 58 y/o female dx with MDS-U June 2008, IPSS:Int. 2. Allogeneic SCT May 25, 2010. Relapsed January 2011. Started Vidaza (azacitadine) Feb. 2011; Currently on cycle #58  , IV, 5-days every six weeks. WBC 5.3, Hgb 13.0, PLT 110 (2/16/18)
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