Quote:
Originally Posted by Sally C
Early on my husband's hematologist drew 3 overlapping circles, representing PNH, AA and MDS. At the time she said it was possible that his diagnosis fit where the 3 circles overlapped. A very strange disease for sure.
All the best to all you brave Warriors. Keep the Faith.
God Bless,
Sally
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Yes, it is a very strange disease, so much so that even my mother's hematologist gets puzzled by it, saying how unpredictable it is. It's not like cancer or standard autoimmune diseases.
You are right: Although my mother has classic aplastic anemia, she could develop secondary PNH (25%) or hypocellular MDS (10-15%). But, again, the doctor said, there is good chance she will only ever have had aplastic anemia. At any rate, the hematologist told my mother that her aplastic anemia is highly immune-mediated (Dr. Young confirmed this, I believe), putting her at risk for PNH most of all. She said that sometimes aplastic anemia is less immune-mediated in some people, requiring treatment that is less immuno-suppressant.
Love and peace,
Matthew