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Old Tue Jul 25, 2017, 05:30 PM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
my experience was only about 3 months prior to moving to transplant. I have met somebody who went 56 months on vidaza before declaring that it was no longer working. he was transfusion depending starting at month 3 and lasting until round 54 or 55.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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