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Alex,
You may want to post this under the PHN forum on this site also. Some just look at threads specific to their disease.
A 30 year remission from SAA is pretty amazing but sorry to hear you have a high PNH clone. We have no experience with PHN but I'm sure someone will chime in.
Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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