View Single Post
  #6  
Old Mon Aug 16, 2010, 08:02 AM
Marlene Marlene is offline
Member
 
Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
That's a difficult situation when you are not able to there at the appointments to ask the questions and get the information first hand. It really puts you at a disadvantage.

I know blood transfusions can effect the kidneys but it's pretty rare and usually happens when there's a poor matching involved. And if they transfuse too fast, that's a problem especially in the elderly.

Sounds like the EPO can help in his case since his kidneys are not functioning properly. They really need to make sure he adequate iron stored in order to this work.

If his doc has limited experience with SAA, it would be good to get another opinion from one of the few doc with experience just to be sure he's getting the right care. Proper supportive care can go a long way to making him feel better.

Wishing the best...
M
__________________
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
Reply With Quote