Dear Meri,
The transplant experience I had back in 1998 was very similar to what you will have. My original diagnosis was aplastic anemia (1996), but at the time of my transplant it was MDS/RA.
My pre-transplant regimen included 11 total body irradiation (TBI) treatments over 4 days followed by cytoxan for 2 days and 1 day of rest. My donor was an unrelated woman who was located through the National Marrow Donor Program (now called
Be The Match).
Some mild GVHD plagued me for a while. I was off all medication after about 4 years. As I wrote in my
profile for this site, my recovery was part work, part luck, and the result of the efforts of many people.
I wish you a successful journey through your transplant to a cure for your MDS.
Regards,
Ruth