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Old Sat Apr 7, 2018, 09:18 AM
MDS2018 MDS2018 is offline
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Join Date: Apr 2018
Location: los banos ca
Posts: 7
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maggiemag,

thanks for responding you are very encouraging for me and my wife because we thought that prognosis was not good, but you are proof that we do have hope, and your post will help me be strong for sure.

I am going to take my wife to the MDS unit at Stanford University, Ca.
I want to at least get foot in door if a stem cell replacement is necessary.

Thanks again for your insight, I hope all goes well for you too.

you are a MDS warrior for sure. I am going to spread the word so people know what MDS is because I dont think enough attention is given to MDS.

Thanks
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Terry Campbell
Wife diagnosed 2mths ago MDS with del5q, She is now on Revlimid 1st treatment, her RBC was 2.4 was 3.1 before. i am here for support and information to help my wife she is not handling all this very well.
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