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Old Wed Oct 2, 2013, 09:09 AM
curlygirl curlygirl is offline
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Join Date: Jun 2013
Posts: 151
Hello,
I don't have any advice but wanted to say that I'm sorry you've had such a harrowing experience. Also, it's still early to see an improvement for a lot of people. From posts it seems like different doctors have different expectations. I've read on here where some doctors are disappointed at the 2-month mark if no improvement is seen. My son's doctor didn't expect to see any improvement at all for at least three months after ATG and was happy to see some recovery of white blood cells earlier that that. I think it's such a rare disease that if, say, a doctor has only treated 6 people that have it and 3 happened to be early responders they start to expect that, even though in a population of 100 only 30 may ordinarily be early responders (for example). It seems like your ANC has risen nicely so far which is a good thing. I'm very sorry that you haven't been able to leave the hospital and for your surgeries. Hopefully the fungus is gone now and your body can focus on healing both your bone marrow and from your surgery.
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