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Old Sun Dec 28, 2014, 03:31 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Golf Nut,

Typically low risk MDS is not treated with Vidaza. To my knowledge, Vidaza is not a permanent cure. So, it seems like you would not want to start using it until you really needed it! Also, all of these drugs have side effects.

What are your counts now? Are you still low risk? Are you transfusion independent? Have you had a recent BMB?
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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