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Day 69
The last few weeks have seen Nicks Ciclosporin upped, and the side effects caused him to be readmitted. All tests proved negative for virus, infection and neurological problems. The levels were then dropped a lot, and another drug, Mycophenelate, added. After a team meeting the Ciclosporin was put at minimum of 50mg per day and some other drugs were left out too. He felt much better for it, but the skin GVHD surfaced again, but mildly on legs and arms. So up with the dreaded Ciclosporin again to 100mg.
The best news was that the 1 month BMB showed 100% donor.
He has had the 2 month BMB and is waiting for results. Neutrophils are now normal, platelets range from 100-140 and haemoglobin around 9 which is still a bit low but causing no problems.
The hickman line was removed this morning, GVHD has subsided and The dreaded Ciclosporin is being reduced again. So things are improving!
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Gem, wife of Nick (57), dx CMML Dec 2007. Treated with 7 cycles Azacytidine. Transplant 30/6 RIC MUD.
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