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I wish I could give you lots of good news, but sadly not. Nick has had some weakness in his right leg since the TIA episode, but over the last 10 days has developed some rt arm weakness. He was admitted on Thurs for a CT scan, which showed 'something new'. A MRI with contrast agent has confirmed the appearances are probably a virus, JC virus or PML virus, which is destroying areas in his brain and causing his symptoms. They are going to try to fight it, but he has some cGVHD which is not fully under control and he will have to come off the cyclosporin so that may well become an issue. It all seems so unfair after all he has achieved so far. The transplant itself was successful and blood levels and BMB all good.
Wish us luck for this next horrible time ahead.
Gem
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Gem, wife of Nick (57), dx CMML Dec 2007. Treated with 7 cycles Azacytidine. Transplant 30/6 RIC MUD.
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