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Old Tue Nov 2, 2010, 06:24 AM
starz starz is offline
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Join Date: Jun 2010
Location: bristol uk
Posts: 43
Thanks for all your wishes. Nick has had immunosuppressants withdrawn now, and whilst the skin GVHD is still present it isnt significantly worse. The PML hasnt really changed much either, which is good. He still has similar sypmtoms to a stroke, with Rt side weakness.
I couldnt find very much info on the internet about the disease, and most referred to AIDS patients. I saw that in the info that comes with Neoral ciclosporin it mentions PML as a side effect!

Paul, I would def go to Kings for a transplant. Despite the problems we are facing, it really seems to be a good unit and a very good experienced team.
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Gem, wife of Nick (57), dx CMML Dec 2007. Treated with 7 cycles Azacytidine. Transplant 30/6 RIC MUD.
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