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Old Mon Nov 8, 2010, 07:31 PM
cheri cheri is offline
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Join Date: Nov 2010
Location: Tuckahoe New Jersey
Posts: 243
Vidaza and Low Platelets

Hi Fred!
Here's hoping your Mom is doing ok....
They admitted her, like myself, as a precaution because when your platelets are that low, spontaneous bleeding can happen, which they can stop in a hospital setting, but at home would get out of control.
My platelets were down to 2k last week and not so much as a nosebleed or anything. I got 2 units of platelets at that point.
The platelet ride is a scary one because there are no symptoms--I've been going thru this for the past year....
Vidaza is not as hard as some other things out there...
I have been living on transfusions on this nadir phase after cycle 3 of Vidaza...is it working? Who knows....I'll wait until at least I finish cycle 4 before next bmb.....maybe 6 cycles.
I feel good and have relatively few other problems.
Hang in there and remember that we are all just trying to figure things out, one experience at a time!
__________________
Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
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