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Nearly 6 months on...
Well, the latest update is that he must be fighting the PML. His aim was to get downstairs for Christmas and he has achieved that, and with relatively few problems. There is still a very long way to go. but he makes small improvements every day still. We have carers provided 3 times a day, but the midday one is becoming less necessary as his skin needs less cGVHD cream.
He is getting more frustrated because he cant do things, like making a cup of tea when he wants. At least its all in the right direction still.
Gem
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Gem, wife of Nick (57), dx CMML Dec 2007. Treated with 7 cycles Azacytidine. Transplant 30/6 RIC MUD.
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