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Old Thu Aug 21, 2014, 12:27 PM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
Bailie,

It sounds like you are doing quite well. As Dave said, get up and move around as much as you comfortably can without wearing yourself down too much. Once your white blood counts start to pick back up, the energy comes back with them. Eating and drinking is all about will power at this point, so find something you like and go with it. For me, it was peanut butter and chocolate - two things that I almost never ate prior to transplant. I also ate a lot of green chili because it tasted good, which is not generally advised due to the spice level.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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