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Hi Rich,
I know there are certain gene mutations responsible for MDS, but genetic testing wasn’t done at the time I was diagnosed. I recommend that you contact the MDS Foundation @mds-foundation.org or the Aplastic Anemia and MDS International Foundation @aamds.org. They are both great resources and you will be able to find a list of the MDS Centers of Excellence there. I hope you get some answers soon!
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Jill, 58 y/o female dx with MDS-U June 2008, IPSS:Int. 2. Allogeneic SCT May 25, 2010. Relapsed January 2011. Started Vidaza (azacitadine) Feb. 2011; Currently on cycle #58  , IV, 5-days every six weeks. WBC 5.3, Hgb 13.0, PLT 110 (2/16/18)
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