Thread: question?
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Old Mon Apr 9, 2012, 09:21 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi rschem,

You don't want to be on cyclosporine forever as it is known to cause subclinical organ damage and irreversible kidney damage. Typically, people will start tapering after their counts have stabilized at high enough levels for 3+ months. The taper should be done very slowly to reduce the risk of relapse - for example: lowering 25mg every 3 months.

It is a little unusual for a doctor to be the one to be afraid to taper! Ususally it is the patient. Is there a specific reason why your doctor thinks that you are at an increased risk of relapse without cyclopsorine? If not, maybe it's time for a second opinion on this.
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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