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Old Thu Sep 8, 2022, 06:03 AM
kazp kazp is offline
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Join Date: Nov 2020
Posts: 25
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Hi Neil,

It was actually the butterfly rash that got me over the line. That, and the cold hands while the face was burning. Such a creature of beauty these days!

Plan of attack, as my heart and kidneys are fine for now, is see what evolves over the spring and summer to see what my level is. I have a few little nodule, lumpy thungs popping up on my knuckles and he wants to see what else, if anything happens in the warmer months. In February, I have to have the blood and urine tests, which will probably come back as normal with no inflammation, but he'll start me off on some prednisone and plaqueril. He said 1% of his patients have negative blood results so I guess that's me. Obviously he wants me to go back sooner if anything super exciting happens but hopefully I'm just a mild case. I also have my next haematologist appointment in February so it's a pin cushion month.
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