[Coach6533]

Dear Linda

Thanks for wanting to share your story. I have had sideroplastic anaemia for 8 years and up until now, transfusions have kept me well. I also have small cell lymphocytic lymphoma.

Last week I was told that the anaemia has evolved to MDS and the only option for treatment is a bone marrow transplant. At my age (61) I know this is a risky procedure.

I am seeing the specialist on Wednesday but I know we will be involved with RIC-Allo, which is less sever conditioning but also means a high chance of the MDS coming back.

What I can't get a grasp on is how much this process will take over my life. When will I be unable to work? And for how long? In the steps leading up to the actual transplant, will I be sick?

I, too, will be cured if this works, which seems like a miracle after so many years of managing the disease. I am thrilled you and your husband had time to be together while he was cured. My husband will love to think there may be a time he can stop worrying about me.

I would be honoured of you wanted to share any more of your story with me.

Many thanks

Sally