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Old Sun Jul 13, 2014, 01:31 AM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
Ray,

It is great to see that you are doing well. Keep up the great attitude and it will help along the way. There are definitely bumps in the road to recovery. I have changed medications up, down, different, good reactions, not so good reactions and just overall changes and now around day +140 with some GVHD. At this time, you get to see how much art is mixed with science when it comes to transplant and medicine as a whole, and keeping on top of your symptoms, reporting them, managing them actively seem to be key to how you feel and how your doctors respond.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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