Hey Kimberly,
I am so sorry for what you have been through.
It sounds to me like you need to go to an AA specialist - Emory may be a good start although others may suggest somewhere else. AA/MDS are very complex diseases that even the specialists have a hard time dealing with.
I strongly suggest finding a hemotologist whose speciality is AA/MDS.
Best of luck to you.
God Bless,
Sally
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