[DebbieS]

Thank you both for your advice. I will be seeing the rheumatologist for some kind of mystery skin condition that I have been dealing with for several years -- I have been told it is perhaps a "cousin" of scleroderma. I have recently seen a reconstructive plastic surgeon for the scars it leaves behind. The cartilage on the end of my nose has been damaged and reduced on one side. Scleroderma is another associated condition of thymoma.
I also thought that if the thymoma was removed -- that many of the associated conditions disappeared or would not develop -- not so with me.
I will get in touch with the group you mentioned -- it would give me a great deal of comfort seeing a doctor more versed in treating this condition.
Thank you for your warm welcome to your site.