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Old Mon Apr 24, 2017, 09:18 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
John would be tired for a few days to a week after a phlebotomy. He had to go to every other month because over time, it was too taxing on his marrow and he wasn't able to replace the lost HGB in time for the next one. There was a time he would only get 1/2 a unit removed every other month.

Keep on eye on how well you replace what you're removing. It took about 3 months for John to see that monthly phlebotomies were to aggressive for him.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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