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Old Sat Jul 22, 2017, 05:30 PM
Callie Callie is offline
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Join Date: Jan 2014
Location: Fayetteville, NC
Posts: 25
Dad's eating & drinking habits...

Eva's daughter - Dad (Bailie) also had a hard time eating and drinking until about Day +45. It took a combination of Zofran and Compazine (anti-nausea drugs), finding the right foods - everything tasted like "dirt clods and cotton balls" (we went to the store and bought one of just about everything, to see what he might like or could stomach), and finding the right drinks - he dry heaved every time he attempted to drink water (for him, pineapple juice, Sunny Delite, and rootbeer worked the best). Once his taste starting changing back to normal, eating and drinking also were so much easier (about the Day +30 time frame, he really scrubbed his tongue - he felt like there was a coating from all the drugs on it. This helped tremendously!). Also, we knew his taste would change. What we didn't expect was how much his sense of smell changed - he could smell everything and it affected his appetite/nauseousness. Buying detergents, soaps, etc., with no scents seemed to help as well.

I'm wishing your Mom, you, and family the very, very best in her journey to Day +100!! Remember - it's nonlinear. Don't get frustrated with minor setbacks, but look for each week to be a bit better (that might be relative) than the last.
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Daughter of Bailie (diagnosed RAEB-2 11/13; transplant 08/14; relapse with Ph+ AML 04/15; remission until 04/17; DLI 06/17; passed away 07/11/17 at Day+1059)...the best dad a daughter could have...
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