Thread: MDS Low Risk
View Single Post
  #9  
Old Wed Aug 2, 2017, 09:57 PM
Bossywife Bossywife is offline
Member
 
Join Date: Apr 2015
Location: Canada
Posts: 103
My husband was hospitalized in 2008 with dangerously low RBC, WBC and platelets. Once he was treated for a suspected "infection" and also new onset Diabetes, he was released with no diagnoses, but quarterly bloodwork for diabetes and platelets.

After 8 years of platelets being 40-95, I started asking questions, then I insisted on a bone marrow biopsy, and it was then that he was diagnosed with MDS RAEB I.

At that time (2015) we were told Watch and Wait, but they wanted bloodwork monthly because he plays hockey and can't play if his platelets fall below 40. So far so good.

NOTE: His bloodwork drastically improved when his diabetes was controlled and he went on Folic Acid, B12, and stopped consuming Aspartame.

We are going for Myeloid Gene Panel testing in 2 weeks.
__________________
Husband (61) dx RAEB1 Apr 2015 after long term bad CBCs (first discovered Apr 2008 after an unknown infection had him hospitalized), currently on watch & wait with monthly bloodwork. Myeloid Gene Panel testing done Aug 2017, showed nothing worrisome. CEBPA mutation
Reply With Quote