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Old Wed Sep 13, 2017, 11:47 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Rarity,

There are a lot of really interesting presentations through the AA&MDSIF on the latest advances in MDS research. If you haven't checked them out, go to:

https://www.pathlms.com/aamdsif/categories/362/courses

One of the more recent ones by Dr Roboz emphasized that although in-depth genetic testing is more common place these days, they are only at the beginning stages of trying to assimilate all of the data - especially since some mutations show up in "healthy" people as well!

The video mentioned that having a low percentage of cells with a mutation is a good thing. Was the BMB before or after his platelets rose to normal levels?

Hopefully, things stay stable or improve for your husband. Watch-n-wait is not a bad place to be
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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