[ussoccer004]

After 8 years and being discharged from the military due to "Pancytopenia", I was admitted to the hospital 2 weeks ago and finally know exactly what I have. The hematologist finally diagnosed PNH, and while scared I am grateful to find this board.

The hematologist wants to start me on Soliris, but I have a question for those that are actually going through the treatments.

1. Does soliris help increase your white cells, neutrophils and platelets?

2. Will Soliris increase my Hemoglobin to the normal counts for a male I believe
12-14 range?

3. Is soliris a treatment we will have to be on for the remainder of one's life?

My recent Hemoglobin was 6.9, my Neutrophils were .5 and Platelets were 103K

I really appreciate any feedback, and sorry if the questions are a little off but I am really anxious and kinda depressed from reading up on the data behind PNH.