Quote:
Originally Posted by Neil Cuadra
The PNH classification system that was proposed here defines PNH as Stage 1 when only cells in the bone marrow are affected, Stage 2 when leukocytes in circulating blood are affected as well, and Stage 3 when erythrocytes are also affected. Stage 3 is therefore the "classical" PNH that most patients are familiar with. Do you think that's what the hematologist was referring to?
Note that many PNH patients have chronic kidney disease (CKD), which is classified in stages. |
I believe so. I am going to a second hematologist monday. This dr. Is the one who diagnosed me in the hospital, so I will write down the questions and answers also and report back. I was reading though that patients don't see improvements in their white or platelets. I have been placed on prednisone on and off for 8 years and it increases my blood counts but they come crashing down when I'm off them.