Mon Feb 3, 2014, 04:53 PM
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Member
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Join Date: Aug 2006
Location: San Jose, California
Posts: 139
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ussoccer 004, there are some great WEBinars on the AAMDS website that explain PNH a little better.
https://client.blueskybroadcast.com/...AMDSIF_072513/
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06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic... 
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