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Contacted NIH
Well, in my stumbling and bumbling around for answers, I sent an email directly to Dr. Young based on the email address for him listed on the NIH web site. Not surprisingly, he indicated that he does not make recommendations or medical evaluations based on email, but that I could schedule an appointment, etc. through the research nurses provided (he provided a couple of names & email addresses).
Hopefully they will be able to answer some of my questions. Perhaps some others out there would like to share their experiences with NIH? Has it been positive overall?
I am trying to make up my mind about making the journey up there... any inputs would be appreciated!
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David M, reds/whites/plats slowly declining since 2000; hypo-cellular bone marrow; diagnosed Mild AA; low counts, but stable since 2009; watch and wait -- no treatments required to this point.
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