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End of the Road - 8 weeks from Diagnosis to No Hope
Well it has been a very short ride. Hopes were dashed today when our doctor said he didn't think my Dad would survive ATG treatment and there was nothing he could do for us. I asked how long he thought we had - that people with AA usually take a year to die without treatment, didn't they? He said it would be a lot sooner than that given his age and deterioration. It could be any time.
So now we have to decide how to die.
Or mortgage the farm to pay for some Eltrombopag. Can't get it any other way in New Zealand except to buy it ourselves. $8,000 USD a month. And who knows if that will work.
Has anyone else had experience with being turned down treatment with ATG? What path did you choose to take?
Sorry if this has been a dark post. It has been a bit of a dark day for us.
Appreciate any thoughts.
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Father 72 has been diagnosed VSAA June 2014, was on cyclosporine as first treatment 06/2014 - 09/2014. 8 weeks after diagnosis doctor believe he would not survive ATG Treatment. GCSF 3 weeks Aug 2014 Currently on Eltrombopag 09/14 Danazol 25/08/14.
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