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Well here's a good news story about doctors for once. Just started with a new GP today, because we've moved and I have been fighting an URTI for the last couple of weeks (silly me). Had asked the medical centre to request my records from my previous centre a couple of weeks ago.
When I went in to see the doctor, he immediately said that he'd received my fat file and had read through it! Amazing. He knew what MDS was and that I had low immunity and was really interested in my version of my history. That was a first for me and made me feel incredibly positive.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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