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Old Sun May 13, 2012, 10:15 PM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hi Rich, this happened to me too but I had IV Vidaza. I still had the Vidaza on the same days as the blood transfusions.

I was told to expect increased blood transfusions for at least the first 3 cycles and maybe up to the first 6 cycles. I was told it would be worth the decrease in counts initially if the Vidaza was successful because a large percentage of people then became transfusion free.

I had other problems and stopped the Vidaza at 5 cycles for other reasons and I can't tell you what the outcome may have been for me. But I think it pays to hang in there for at least 3 or 4 more cycles.

Regards
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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