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Old Sun Jan 10, 2010, 08:42 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
John's been using omega 3 oils from pre SAA and after treatment. It has never bothered his platelets. At one point, our doc said to stop the omega oil as trial to see if was effecting them and it wasn't, so he went back on it. Essential Fatty acids like omega 3 are so important to so healing and with all his nerve damage, we kept using nutrients to help heal the nerves. That included antioxidants that many times are said to thin the blood also. We also monitored his clotting times from time to time to make sure.

At one point, he did try shark oil but it did not have effect on his platelet. We have found that no supplement makes a difference in his CBC either way and stopped trying to find something that does and just focus improving overall health.

Once John was able to sustain 8K platelets on his own, we found that his own 8K platelets worked better than 30K of someone else's.

It's kind of funny in that before we knew he had SAA, he was having lots of headaches. He was taking aspirin once or twice a day!!!! Yikes!!! His platelets back then were 10K and he still didn't have bleeding. He did have petichia on his lower legs though but we were clueless as to what that was.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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