Response to "4 Years + . . ."
Kirby:
I was so relieved to read your message because your profile is somewhat similar to mine. I was diagnosed with MDS - RAEB-II exactly one year ago. My doctor recently discontinued my treatment of six months - a trial that combined Vidaza with an experimental drug. There was no apparent impact one way or the other. So I just last week started Revlimid. I was rather skeptical when the doctor first proposed it becuase the literature associates the drug with 5q deletion patients. Like you, I am not 5q. (I am 20q and 13q). I realize that everyone is different. But it is good to know that Revilimid has shown promising impacts on non-5q patients.
Also, thanks for reminding me how important it is to maintain a positive attitude. It was quite a shock to receive my diagnosis at 52 years of age and at a stage in my life when I was feeling my best ever.
All the best.
Leslie
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Leslie, 53, diagnosed MDS July 2007, RAEB II, 20q and 13 q del, currently taking Revlimid.
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