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Old Tue May 7, 2013, 02:11 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Bolinger,

Be sure to get a copy of your son's lab and BMB results every time he gets one so that you can spot the trends and subtle changes. Also, don't be afraid to ask the doctor what specifically makes your son "an enigma".

Did the doctors run your son through a battery of tests to rule out everything else (arsenic, parovirus, heavy metals, etc.)? AA is a diagnosis of exclusion.
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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