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Old Wed Feb 12, 2014, 03:32 PM
Honeybun Honeybun is offline
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Join Date: Aug 2013
Location: Perth Western Australia
Posts: 90
No sibling match

I was informed today, that both my siblings are not a match. I am quite devastated as are my siblings even though we knew what the odds were. I signed the paperwork today to start a worldwide search at the haemo's office.

It has now raised some questions.

Does anyone know the costs (to me) of a transplant if you find a donor overseas ? I couldn't find anything on the web regarding Australian transplant costs.

How long is the process to find a match? I think I read on here somewhere that the Australian donor search is not that quick.

I am sure I will have more later, just can't think right now.

Thanks

Honey
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Dx June 2013 MDS del 5q and 7t. Further chromosone changes August 2017. Lenolidomide and 10 months on Azacytadine failed. Transition to AML August 2018 failed induction chemo. Trial drug FT2101 failed at 6 months. Next on Venetoclax with cytoterabine.
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