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Sorry to hear about your son's situation. My spouse has been on watch and wait for going on three years now, and his former and current hematologists seem to think that he could remain stable for years. The details are in some of my other posts in this and other forums.
Can you say more about the doctors' perceptions of the causes of your son's low iron stores? My spouse's iron stores, too, have been very much out of whack--ferritin supplies almost depleted, etc. He's taking serious iron supplements which have helped bring up his RBC counts to near-normal levels, but he still struggles with fatigue, headaches, and what I perceive to be digestion/absorption issues despite turning up w/ negatives on tests for celiac and that sort of thing.
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