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Oh Laura, I'm so sorry to hear you're still suffering with this. It sounds like it might be time to get a second opinion, as you must have exhausted everything Mayo have to say on the matter by now.
I wish I knew the area to suggest something to you. Have you got anyone on your transplant team that can suggest elsewhere (I say so because my post-transplant nurse just arranged a referral for me to a different hospital's gynae dept so maybe they can do the same for you to a different hospital's gastro-internal dept?)?
But on the upside, we're at the year and a half mark now! Must mark these milestones to remember how far we've both come...
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!  I've run 5 marathons now!! (PB 3:30!)
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